I’m just going to type it all out so there’s an understanding because over the past few days I’ve only hinted at things through frustrated text posts.
I’ve had depression for a few years, both my parents have it too. My sister helps a lot of children with autism and Aspergers. While at university studying both of those she noticed a lot of similarities between me and the case studies she was going through, more than one case study being spot on with some things.
In July I talked with my sister about it and decided to get checked out, have some tests done etc. After the tests I was diagnosed with Aspergers and adult ADHD. I’m told the Aspergers means my mind is wired differently to a person without Aspergers. With the Aspergers I see things differently so I’ll interpret things in a different way to what someone intended and how other people saw it, I remember really small details well like numbers that aren’t important and loads of other things that if I were to type all of them down it would need its own text post. With the ADHD my right leg shakes a lot, particularly when I’m stressed or nervous, I fidget a lot and I struggle to keep an interest in something for a long period of time, usually I have to stop and do something else.
So now onto my posts about frustration with groups and people within the NHS.
I had my official tests for Aspergers and adult ADHD where I scored highly in both of them. My doctor passed my results through to a place that does further analysis for people with Aspergers. ADHD, etc. This was meant to be a phone interview and three weeks ago I received the call saying “your doctor has already diagnosed you so we don’t need to do a phone analysis, we can send your details to a place that can help with your Aspergers and ADHD.” I was thrilled that I didn’t have to do a phone analysis because I hate talking about my symptoms and examples of them. I wasn’t happy that I had been diagnosed 2nd October without being informed until three weeks ago. So I waited to hear from the people at the next stage, I was informed I’d hear from them in the next week. Earlier this week I called up to see what was happening, they had me on their registers since 2nd October but hadn’t done anything with me because they hadn’t received enough information from the phone analysis, that one I was told I didn’t have to do.
So for the last few days I’ve been passed around by the 2 groups not wanting to do anything with me, one group saying “you need to get more information, do a phone analysis” and the other group saying “no you have the information, we don’t need to do a phone analysis”
This is where it gets more complicated. The people at the final stage, now changed their story after I demanded to speak to someone higher up, what had happened was is in the referral from my doctor, it said Aspergers/ADHD and the place where I could actually get help only dealt with ADHD, not Aspergers so they’re refusing to do anything with me because the referral didn’t just say ADHD. I was told that my next step was that I had to get a different referral from my doctors only saying ADHD.
I called the doctors and the woman said that my doctor goes on holiday tomorrow and won’t be back until 2nd January so that’d be three months after being diagnosed with absolutely nothing happening because I’d been messed around and not told the right information etc.
I wasn’t having that so I walked to the doctors (something that I was really scared about) and said can I just pass a message to him asking to do a referral but not include the Aspergers, the same woman at the desk said no again, then the manager came out and I explained what had happened to her (by this point my leg was shaking like mad) and she understood and said that she’ll print of the referral sheet now and fill it out herself, if she needed any information from my doctor she would leave those bits blank and get him to fill them in tomorrow then send it off as soon as possible.
Now I have to wait to hear back from the people who are meant to see me about my ADHD , but I’ve cut out about 3 weeks of waiting around doing nothing so that’s great. However, now I have to go to the doctors when he gets back and hopefully we can sort something out so I can understand my Aspergers more and learn to live with it.
everyone has said and done problematic things in their lifetime. that’s a result of the society we live in, not necessarily a reflection of their character.
what is a reflection of their character is how they react to being informed of the negativity within their behavior and statements, and whether or not they choose to change their behavior.
"You found my porn blog" wasn’t something I was expecting to wake up to.
if you ever call me cute i will think about it all day
and when i go to sleep i’ll just be a little burrito of blankets
and i will whisper quietly
“they called me cute”